Knowledge about sudden infant death syndrome prevention among postpartum women in Southern Brazil, 2019: a cross-sectional survey / Conocimiento sobre la prevención del síndrome de muerte súbita del lactante en puérperas del Sur de Brasil, 2019: un estudio transversal / Conhecimento sobre prevenção da síndrome da morte súbita do lactente entre puérperas no Sul do Brasil, 2019: um estudo transversal

ABSTRACT Objective To assess knowledge on sudden infant death syndrome (SIDS) prevention among postpartum women who received prenatal care in public and private services in Rio Grande, Rio Grande do Sul, Brazil, in 2019. Methods A cross-sectional study was conducted with postpartum women who gave birth in that municipality in 2019; the outcome was the indication of incorrect sleeping position (side/supine position) to prevent SIDS; the chi-square test was used to compare proportions between those who underwent prenatal care in public and private services. Results Among all 2,195 postpartum women, 67.7% (95%CI 65.7;69.6) were unaware of the position that prevents SIDS, 71.6% were public care service users; 77.8% of them feared choking/suffocation; 1.9% were informed about SIDS during prenatal care; doctors/nurses (70.5%) and grandmothers (65.1%) were influential regarding the baby's sleeping position. Conclusion Most postpartum women were unaware of the sleeping position that prevents SIDS, especially those receiving care in the public sector; in general, this subject is not discussed in prenatal care.

RESUMEN Objetivo Evaluar el conocimiento sobre la prevención del síndrome de muerte súbita del lactante (SMSL) entre puérperas que realizaron prenatal en servicios públicos y privados en Rio Grande, Rio Grande do Sul, Brasil, en 2019. Métodos Estudio transversal, con puérperas que dieron a luz en Rio Grande, en 2019; el resultado consistió en la indicación de posición incorrecta para dormir (lado/supino) para prevenir el SMSL; utilizando chi-cuadrado, se compararon las proporciones entre mujeres que recibieron atención prenatal en servicios públicos y privados. Resultados Entre las 2.195 puérperas, 67,7% (IC95% 65,7;69,6) desconocían como se previene el SMSL, estando el 71,6%, en la red pública; 77,8% temía asfixiarse/ahogarse; el 1,9% fue informado sobre el SMSL durante el prenatal; los médicos(as)/enfermeros(as) (70,5%) y los abuelos (65,1%) influyeron en la posición para dormir del bebé. Conclusión La mayoría de las puérperas desconocían la posición que previene el SMSL, especialmente en la red pública; en general, este tema no está cubierto en la atención prenatal.

RESUMO Objetivo Avaliar o conhecimento sobre prevenção da síndrome da morte súbita do lactente (SMSL) entre puérperas com pré-natal realizado nos serviços público e privado de Rio Grande, Rio Grande do Sul, Brasil, 2019. Métodos Estudo transversal, com puérperas do município; seu desfecho constituiuse da indicação de posição incorreta para dormir (decúbito lateral ou dorsal), visando prevenir a SMSL; utilizou-se o teste qui-quadrado para comparar proporções do desfecho e de exposição entre puérperas que realizaram pré-natal nos serviços público e privado. Resultados De 2.195 puérperas, 67,7% (IC95% 65,7;69,6), majoritariamente atendidas na rede pública (71,6%), desconheciam a posição preventiva da SMSL; 77,8% temiam engasgo/afogamento; 1,9% foram informadas sobre SMSL no pré-natal; médicos(as)/enfermeiros(as) (70,5%) e avós (65,1%) mostraram-se influentes na decisão sobre como posicionar o bebê adormecido. Conclusão A maioria das puérperas, especialmente as atendidas na rede pública, desconhecia a posição que previne SMSL; geralmente, o tema não é abordado no pré-natal.

Actualización de las recomendaciones sobre sueño seguroUpdate on safe sleep recommendatios

RESUMEN La muerte súbita de un lactante puede ser de causa explicada, indeterminada -si no se investigó en forma suficiente- o inexplicada -cuando una investigación completa no permite determinar su causa-. La muerte súbita inexplicada, o síndrome de muerte súbita infantil, afecta en particular a las poblaciones más vulnerables. La muerte de estos niños que nacen con alteraciones del neurodesarrollo es la parte visible de una problemática que se origina en el embarazo. Disminuir la cantidad de niños vulnerables depende de políticas de salud y, sobre todo, de lograr mejorar las condiciones de vida de la población. Son acciones a largo plazo. Conocer a fondo los factores de riesgo que pueden desencadenar la muerte inesperada es lo que se puede hacer ya. La actualización de las recomendaciones sobre sueño seguro refleja nuevos conocimientos basados en la evidencia científica y un enfoque integral de los aspectos socioculturales relacionados con esta problemática.

ABSTRACT Sudden unexpected infant death may be explained, cause by an etiology, unexplained but insufficiently investigated, or unexplained when a full investigation fails to determine the cause. Unexplained sudden death in infancy or sudden infant death syndrome particularly affects the most vulnerable populations. The death of these children who are born with alterations in their neurodevelopment is the visible part of a problem that originates in pregnancy. Reducing the number of vulnerable children depends on health policies and, above all, on improving the living conditions of the population. These are long-term actions. Knowing in depth the risk factors that can trigger unexpected death is what can be done now. The update of the recommendations on safe sleep reflects new knowledge based on scientific evidence and a comprehensive approach to the sociocultural aspects related to this problem.

Actualización de las recomendaciones sobre sueño seguro / Update on safe sleep recommendatios

La muerte súbita de un lactante puede ser de causa explicada, indeterminada ­si no se investigó en forma suficiente­ o inexplicada ­cuando una investigación completa no permite determinar su causa­. La muerte súbita inexplicada, o síndrome de muerte súbita infantil, afecta en particular a las poblaciones más vulnerables. La muerte de estos niños que nacen con alteraciones del neurodesarrollo es la parte visible de una problemática que se origina en el embarazo. Disminuir la cantidad de niños vulnerables depende de políticas de salud y, sobre todo, de lograr mejorar las condiciones de vida de la población. Son acciones a largo plazo. Conocer a fondo los factores de riesgo que pueden desencadenar la muerte inesperada es lo que se puede hacer ya. La actualización de las recomendaciones sobre sueño seguro refleja nuevos conocimientos basados en la evidencia científica y un enfoque integral de los aspectos socioculturales relacionados con esta problemática.

Sudden unexpected infant death may be explained, cause by an etiology, unexplained but insufficiently investigated, or unexplained when a full investigation fails to determine the cause. Unexplained sudden death in infancy or sudden infant death syndrome particularly affects the most vulnerable populations. The death of these children who are born with alterations in their neurodevelopment is the visible part of a problem that originates in pregnancy. Reducing the number of vulnerable children depends on health policies and, above all, on improving the living conditions of the population. These are long-term actions. Knowing in depth the risk factors that can trigger unexpected death is what can be done now. The update of the recommendations on safe sleep reflects new knowledge based on scientific evidence and a comprehensive approach to the sociocultural aspects related to this problem.

Challenges of Second-hand Smoke: Are We Asking the Right Questions?

Second-hand tobacco smoke as defined by WHO is the smoke emitted by a smoker or released from a burnt cigarette or any tobacco product. It is highly prevalent all over the globe but its serious health implications are often neglected by the public and the scientific community alike. Second-hand smoke has everlasting impact on all the body’s major organs, especially among the vulnerable population of children, pregnant ladies, people with chronic diseases and senior citizens. Although India started its war against this menace earlier than other counties, all its efforts remain bootless as its approach and implementation have a wide range of lacunae. This review aims to give a big picture of second-hand smoke, highlighting its pathophysiological changes in the body, socioeconomic impact, various strategies, and the gap that prevents these strategies from finding a favorable result in India. It becomes all the more important to reduce its impact owing to the increase in prevalence among youth reducing their vitality, derailing the society and the nation. It is recommended that the health authorities approach this health problem with utmost seriousness as a laid-back approach could welcome this silent killer’s known and unknown repercussions

Fatores associados ao conhecimento das mães sobre a Síndrome da Morte Súbita do Lactente / Factors Associated with Mothers' Knowledge about Sudden Infant Death Syndrome

A Síndrome da Morte Súbita do Lactente é definida como a morte de qualquer lactente com menos de um ano de idade, sendo a posição de dormir, em posição prona, é o mais importante fator de risco. Assim, a divulgação maciça dos fatores de risco para essa síndrome é fundamental para que principalmente as mães saibam seus fatores e consigam evitar esse acidente. Dessa forma, o objetivo desse estudo foi verificar o conhecimento das mães sobre os fatores de risco e de proteção sobre a síndrome da morte súbita do lactente e sua associação às condições socioeconômicas e demográficas. Participaram 502 mães de crianças que estiveram presentes na vacinação da poliomielite. Foram coletadas informações socioeconômicas, demográficas e o conhecimento das mães sobre os fatores associados à síndrome. Realizado teste qui-quadrado, para associar a variável dependente (número de acerto das mães) com as independentes (socioeconômicas e demográficas). Foi utilizada análise de variância (ANOVA) para idade, renda e grau de escolaridade e modelo linear generalizado, para exclusão social. A maioria das mães (72,34%) relatou já ter ouvido falar sobre a síndrome, porém, apenas 51,9% sabia descrevê-la. Houve associação entre menor acerto nas questões (p=0,0001) e nunca ter ouvido falar sobre a síndrome. Mães que não ouviram falar e acertaram menos questões moravam em bairros com índice de exclusão social pior do que as que já ouviram falar. Conclui-se que, mães que nunca ouviram falar sobre a síndrome e consequentemente acertaram menos questões, moravam em bairros com índice de exclusão social pior do que as que já ouviram falar sobre a síndrome. Entretanto, dentre todos os fatores relacionados à síndrome, a posição de dormir foi aquela com maior número de acerto pelas mães.

Sudden Infant Death Syndrome is defined as the death of any infant under one year of age, with a sleeping position, in the prone position, being the most important risk factor. Thus, the massive dissemination of risk factors for this syndrome is fundamental so that mothers, specifically, would know these factors and be able to avoid this accident. Therefore, the objective of this study was to verify the knowledge of mothers about the risk and protective factors for sudden infant death syndrome and its association with socioeconomic and demographic conditions. 502 mothers of children who went for a polio vaccination participated. Socioeconomic and demographic information and mothers' knowledge of factors associated with the syndrome were collected. A chi-square test was performed to associate the dependent variable (number of mothers' correct answers) with the independent variables (socioeconomic and demographic data). Analysis of variance (ANOVA) was used for age, income, and level of education and a generalized linear model for social exclusion. Most mothers (72.34%) reported having heard about the syndrome; however, only 51.9% knew how to describe it. There was an association between lower accuracy in the questions (p=0.0001) and never having heard about the syndrome. Mothers who had not heard about it and got fewer questions right lived in neighborhoods with a worse social exclusion index than those who had already heard about it. It is concluded that mothers who had never heard about the syndrome and consequently answered fewer questions correctly, lived in neighborhoods with a worse social exclusion index than those who had already heard about the syndrome. However, among all the factors related to the syndrome, the sleeping position was the one with the highest number of correct answers by the mothers.

Educação em saúde de pais e cuidadores para prevenção da síndrome da morte súbita em lactentes / Health education for parents and caregivers to prevent sudden infant death syndrome / Educación para la salud de padres y cuidadores para prevenir la muerte súbita del lactente

Objetivo: identificar publicações que abordam a educação em saúde relacionada à prevenção da Síndrome da Morte Súbita em Lactentes. Método: revisão integrativa realizada no PubMed, Portal Periódicos da Coordenação de Aperfeiçoamento de Pessoal de Nível Superior, Cochrane Reviews, Scientific Electronic Library Online e a Biblioteca Virtual em Saúde. Incluíram-se aquelas nas línguas inglesa, espanhola e portuguesa, sem recorte temporal, disponíveis gratuitamente, independentemente do delineamento. Excluíram-se duplicidades, literatura cinzenta, editoriais e cuja população eram prematuros. Resultados: identificou-se duas categorias de análise: temas para educação em saúde e barreiras e facilitadores de aderência às recomendações de prevenção. O profissional de saúde deve estimular as boas práticas de saúde, identificando barreiras e facilitadores para a adesão às recomendações. Conclusão: o profissional deve trazer a ideia de que todo bebê tem risco potencial para a síndrome da morte súbita e utilizar as estratégias disponíveis para tirá-lo da situação de vulnerabilidade.

Objectives: : to identify publications that address health education regarding the prevention of Sudden Infant Death Syndrome. Method: integrative review carried out in PubMed, Portal Periódicos da Coordenação de Aperfeiçoamento de Pessoal de Nível Superior, Cochrane Reviews, Scientific Electronic Library Online and the Biblioteca Virtual em Saúde. Publications in english, spanish and portuguese were included, without time frame, available for free, that addressed health education on sudden infant death syndrome, regardless of design. Those whose population was premature, duplicity, gray literature and editorials were excluded. Results: two categories of analysis were identified, namely: topics of health education and barriers and facilitators of adherence to prevention recommendations. The health professional should encourage good health practices, identifying barriers and facilitators for adherence to recommendations. The approach must be done in a collaborative and in accessible language to facilitate communication and bonding between the parties. Conclusion: the professional must be sensitive to the idea that every baby may be at potential risk and, therefore, must use the tools and strategies available to take this individual out of a situation of vulnerability- if any.

Objetivos:identificar publicaciones que aborden la educación para la salud sobre la prevención del Síndrome de Muerte Súbita del Lactente. Método: revisión integrativa realizada en PubMed, Portal Periódicos da Coordenação de Aperfeiçoamento de Pessoal de Nível Superior, Cochrane Reviews, Scientific Electronic Library Online y lá Biblioteca Virtual em Saúde. Se incluyeron publicaciones en inglés, español y portugués, sin límite de tiempo, disponibles de forma gratuita, que abordarán la educación en salud sobre síndrome de muerte súbita del lactente, independientemente del diseño. Se excluyeron aquellos cuya población fue prematura, duplicidad, literatura gris y editoriales. Resultados:se identificaron dos categorías de análisis, a saber: temas de educación para la salud y barreras y facilitadores de la adhesión a las recomendaciones de prevención. El profesional de la salud debe incentivar las buenas prácticas de salud, identificando barreras y facilitadores para la adherencia a las recomendaciones. El acercamiento debe hacerse de forma colaborativa y en un lenguaje accesible para facilitar la comunicación y el vínculo entre las partes. Conclusión: el profesional debe ser sensible a la idea de que todo bebé puede estar en riesgo potencial y, por lo tanto, debe utilizar las herramientas y estrategias disponibles para sacar a ese individuo de una situación de vulnerabilidad, si la hay.

Clinical analysis of 172 cases of neonatal death after giving up treatment / 中国医师杂志

Objective:To summarize the situation of dead newborns and their parents after parents gave up treatment, and analyze the reasons and emotional needs of parents who gave up treatment, so as to provide reference for reducing neonatal mortality and negative emotions of parents.Methods:A retrospective study was conducted to collect the data of neonates and mothers who died after giving up treatment reported in Hunan Children′s Hospital from January 2019 to December 2021. The general information, perinatal risk factors, and the incidence of in-hospital diseases were analyzed. Then, semi-structured interviews were conducted with parents of newborns who died after giving up treatment from February to December 2021. Understand why parents give up treatment and their emotional needs.Results:A total of 172 newborns died after giving up were included in the analysis, including 103 males (59.88%) and 74 premature infants (43.02%); Umbilical cord, placenta and amniotic fluid abnormalities were 21 cases (12.21%), 39 cases (22.67%) and 25 cases (14.53%), respectively. Birth asphyxia was 31 cases (18.02%), including severe asphyxia in 18 cases (10.46%); There were 21 (12.21%), 35 (20.35%) and 30 (17.44%) cases of maternal infection in the third trimester, hypertension in pregnancy and diabetes in pregnancy, respectively. The top three causes of death were septicemia (18.02%), congenital malformation (16.86%) and severe pneumonia (10.47%). The main reason why parents give up treatment was that the child′s disease was critical and irreversible, and parents had strong emotional needs for hospice care in their hearts.Conclusions:There are many high risk factors of perinatal death of newborns after giving up treatment. Sepsis is the primary cause of death, and strengthening perinatal health care is fundamental. Parents have a strong demand for hospice care, so it is of practical significance to implement family-centered hospice care model for such special newborns.

Skin-to-skin contact and deaths in newborns weighing up to 1800 grams: a cohort study

Abstract Objective: To evaluate the association between dose of skin-to-skin contact (SSC) per day and initiation time with the occurrence of deaths in newborns with weight up to 1800g. Method: Multicentric cohort in five Brazilian neonatal units, including newborns with a birth weight of ≤1800g. The time of SSC was registered in individual file, by the team or family during the hospitalization. Maternal and newborn data were obtained through questionnaires applied to mothers and in medical records. Classification Tree was used for data analysis. Results: The performance of the first SSC after 206h was significantly associated with death (p = 0.02). Although there was no association between SSC/day and death (p = 0.09), the number of deaths among those who performed more than 146.9 minutes/day was lower (3;1.5%) than among those who performed this practice for a shorter time (13;6.4%), a fact considered of great clinical importance. Early and late infections present statistically significant associations with the outcome. The chance of death was equal to zero when there was no early infection in the group with the longest duration of SSC. This probability was also equal to zero in the absence of late sepsis for the group with less than 146.9 minutes/day of SSC. Conclusions: The first SSC before 206 hours of life is recommended in order to observe a reduction in the risk of neonatal death. Staying in SSC for more than 146.9 min/day seems to be clinically beneficial for these neonates mostly when it was associated with the absence of infection.

Compassionate and standard operating procedure-based counseling and practice are essential in high-risk infantile anesthesia and managing death in eye surgery

Physicians have to play the role of a team leader and counselor and take written informed consent for high?risk surgeries in many cases. This is the first step toward initiating a mutually trustworthy relationship with the patient and family. The situation is more sensitive when vulnerable patients like small premature babies or the elderly are under consideration. In the event of a death, leadership and processes in place become extremely critical. We share our experience and practice pattern during this process, especially suited to India, but the broad principles would apply to most human situations. Hopefully, some of these can be incorporated into the existing training curriculum for team building and the art of effective physician?patient communication that should be intricately woven into the curriculum for the Science of Ophthalmic care.

Quality of children's death records for regionalized spaces: a methodological route / Qualidade dos registros de óbitos infantis para espaços regionalizados: um percurso metodológico

ABSTRACT: Objectives: To propose a methodological path to investigate the coverage and information filling of maternal-infant deaths recorded in the Ministry of Health's Mortality Information System for regional spaces. Methods: Four steps were proposed: 1) Assessment of the completeness of the maternal and child variables, which was measured using the deterministic linkage technique between the Mortality Information System (Sistema de Informações sobre Mortalidade - SIM) and the Live Birth Information System (Sistema de Informações sobre Nascidos Vivos - SINASC); 2) Application of the multiple imputation technique to achieve the total filling of the missing information of the variables; 3) Estimation of death coverage; 4) The Unknown Variable Information Index (Índice de Informação Desconhecida da Variável - IIDV) was measured, which represents the combined effect of data completeness and coverage of deaths. The proposal of the methodological path was exemplified for neonatal deaths in the municipalities of Paraíba that are part of the new classification proposed by the Brazilian Institute of Geography and Statistics (Instituto Brasileiro de Geografia e Estatística - IBGE), as adjacent rural areas, in three triennium periods from 2009 to 2017. Results: The percentage of matching records was 45%. Most of the variables had a percentage of non-completion below 10% and around 17% for the mother's education. Coverages ranged from 75 to 83%. The IIDV for all variables was between 21 and 36% after the linkage. Conclusion: The path of the methodological proposal proved to be effective, which can be replicated to other regions, and can be extended to other categories of deaths such as post-neonatal. The combination of the proposed procedures demands low operating costs and their uses are relatively simple to be applied by the managers and technicians of the vital statistics information systems.

RESUMO: Objetivos: Propor um percurso metodológico para investigar a cobertura e o preenchimento das informações materno-infantis dos óbitos infantis registrados no Sistema de Informação de Óbitos do Ministério da Saúde para espaços regionais. Métodos: Quatro etapas foram propostas: avaliação da completude das variáveis materno-infantis, a qual foi dimensionada por meio da técnica linkage determinístico entre o Sistema de Informações sobre Mortalidade (SIM) e o Sistema de Informações sobre Nascidos Vivos (SINASC); aplicação da técnica de imputação múltipla para alcançar a totalidade do preenchimento das informações faltantes das variáveis; estimação da cobertura dos óbitos; e medição do Índice de Informação Desconhecida da Variável (IIDV), que representa o efeito conjunto da completude e da cobertura dos dados. A proposta do percurso metodológico foi exemplificada para os óbitos neonatais dos municípios da Paraíba que fazem parte da nova classificação proposta pelo Instituto Brasileiro de Geografia e Estatística (IBGE) — rurais adjacentes —, em três triênios de 2009 a 2017. Resultados: O percentual de pareamento dos registros foi de 45%. A maior parte das variáveis teve percentual de não preenchimento inferior a 10% e em torno de 17% para a escolaridade da mãe. As coberturas variaram de 75 a 83%. O IIDV para todas as variáveis ficou entre 21 e 36% após o linkage. Conclusão: O percurso da proposta metodológica mostrou-se efetivo, pode ser replicado para outras regiões e é extensivo a outras categorias de óbitos, como os pós-neonatais. A combinação dos procedimentos propostos demanda baixos custos operacionais, e seus usos são relativamente simples de serem aplicados pelos gestores e técnicos dos sistemas de informações das estatísticas vitais.

Chupete: más que un calmante / Pacifier: more than a sedative

El chupete es un dispositivo utilizado para calmar a los lactantes y niños pequeños; sin embargo, se lo asocia a efectos nocivos. Muchas veces en la consulta los cuidadores solicitan la opinión de los profesionales de la salud sobre su uso; por este motivo, decidimos realizar una búsqueda bibliográfica de la mejor evidencia disponible. En base a la información recabada y analizada, concluimos que la introducción precoz del chupete (antes de las dos semanas de vida) no afectaría el amamantamiento hasta los seis meses, y que en niños con lactancia materna bien establecida y madres motivadas para amamantar, no influye en el destete precoz. Además existe evidencia débil a favor del uso del chupete para reducir el riesgo del síndrome de muerte súbita del lactante, mientras que su uso durante la dentición primaria se asocia al desarrollo de mordida cruzada posterior. (AU)

The pacifier is a device used to soo the infants and young children; however, it is associated with harmful effects. Many times during consultation, caregivers ask for the opinion of health professionals about its use; for this reason, we decided to perform a literature search of the best available evidence. Based on the collected and analyzed information, we concluded that the early introduction of the pacifier (before two weeks of life) would not affect breastfeeding until six months of age, and that in children with well-established breastfeeding and mothers motivated to breastfeed, it does not influence early weaning. Furthermore, there is weak evidence in favor of pacifier use to reduce the risk of sudden infant death syndrome, while its use during primary dentition is associated with the development of posterior crossbite. (AU)

Malos hábitos de sueño en lactantes: factor de riesgo para síndrome de muerte súbita del lactante: estudio piloto / Bad sleeping habits in infants: risk factor for sudden infant death syndrome: pilot study

INTRODUCCIÓN: La Academia Americana de Pediatría recomienda que los lactantes menores de un año duerman en posición supina para prevenir el síndrome de muerte súbita en lactantes (SMSL). OBJETIVO: Describir la posición en que duermen un grupo de lactantes y factores de riesgo asociados al SMSL. SUJETOS Y MÉTODO: Estudio piloto, prospectivo concurrente, de lactantes < 45 días de vida en control sano en Centro Médico San Joaquín UC Christus. Criterios de exclusión: prematurez (edad gestacional < 37 semanas) y patología de base (respiratorias, metabólicas, cardiológicas). Se aplicó encuesta al cuidador principal respecto a datos demográficos y hábitos de sueño, basada en encuesta BISQ (Brief Screening Questionnaire for Infant Sleep Problems) validada en español, dado la inexistencia de instru mentos para < 3 meses. RESULTADOS: Se obtuvo muestra de 100 lactantes de edad 16,78 ± 12,88 días de vida, siendo 57% mujeres. La madre fue el principal informante (84%). El 79% de los lactantes dor mían en decúbito supino, 19% lo hacía de lado y 2% en prono. El 66% dormía en cuna en habitación de los padres, 31% en la cama de los padres. El 74% se quedaban dormidos durante la alimentación. El 28% de los lactantes estaban expuestos a tabaquismo pasivo. El 91% cuidadores estaba informa do sobre la posición segura de sueño, siendo el principal informante el pediatra (54%). CONCLUSIONES: En esta muestra se encontró alto porcentaje de lactantes < 45 días que duermen en posición no segura, siendo frecuente el colecho. Es importante implementar campañas locales de prevención del SMSL que refuercen el hábito de dormir seguro.

INTRODUCTION: The American Academy of Pediatrics recommends, through the implementation of the "Back to Sleep (BTS)" campaign, the supine sleeping position for infant sleeping since it prevents to prevent Sudden Infant Death Syndrome (SIDS). OBJECTIVE: To describe the sleeping position of a group of infants and the risk factors associated with sudden infant death syndrome (SIDS). SUBJECTS AND METHOD: Prospective pilot study, including infants < 45 days of life in well-child care visits at a medical center. Exclusion criteria: Preterm-born infant (gestational age < 37 weeks) and/or comorbidities (pulmonary, metabolic, cardiologic). A brief parental questionnaire was conducted regarding general demographic data and sleep habits. The questioner was based on the BISQ - Spanish version, due to the lack of validated instruments for infants < 3-month-old. RESULTS: We included a sample of 100 infants between 16.78 ± 12.88 days old (57% girls). Mothers were the main information source (84%). 79% of the infants slept in supine position, 19% slept on their sides, and 2% in prone position. Regarding the place where the infants slept, 66% did in their crib in the parents' room and 31% slept in parents' bed. 74% of infants fell asleep while being fed. 28% of infants were exposed to passive smoking at home. 91% of parents were informed about safe sleep positions, reporting that pediatricians were the main source of information (54%). CONCLUSION: We found a high percentage of infants < 45 days of life who slept in an unsafe position, and frequently co-sleep with their parents. Thus, it is important to implement local SIDS prevention campaigns to reinforce safe infant sleep.

Risk and protective factors for sudden infant death syndrome / Factores de riesgo y de protección para la síndrome de la muerte súbita del lactante / Fatores de risco e de proteção para a síndrome da morte súbita do lactente

ABSTRACT Objectives: To verify the occurrence of the risk and protective factors for sudden infant death syndrome during nursing consultation. Methods: Retrospective cohort study conducted based on medical records from a primary care unit in the municipality of São Paulo. The sample consisted of 63 infants assisted from January to December 2016. Results: The average age of infants was 3.2 months. The main risk factors identified were the presence of soft objects in the crib (93.6%) and bed sharing (58.7%). Predominant protective factors were breastfeeding (95.2%) followed by updated immunization (90.5%). Conclusions: Risk and protective factors for sudden infant death syndrome were identified in the study sample, indicating the importance of addressing the issue with families of children under 1 year of age to prevent the occurrence of such events.

RESUMEN Objetivos: Verificar la ocurrencia de factores de riesgo y de protección para la síndrome de la muerte súbita del lactante durante consulta de enfermería. Métodos: Estudio de cohorte retrospectivo conducido a partir de registros en prontuario de salud de servicio de atención primaria del municipio de São Paulo. La muestra ha sido compuesta por 63 lactantes atendidos en el período de enero a diciembre de 2016. Resultados: La media de edad de los lactantes ha sido de 3,2 meses. Los principales factores de riesgo identificados han sido la presencia de objetos blandos/suaves en la cuna (93,6%) y el compartir de lecho (58,7%). Factores de protección predominantes han sido: amamantamiento materno (95,2%) seguido de inmunización actualizada (90,5%). Conclusiones: Han sido identificados factores de riesgo y de protección para la síndrome de la muerte súbita del lactante en la muestra estudiada, indicando la importancia del abordaje de la temática junto a las familias de niños menores de 1 año, para prevención de la ocurrencia de tales eventos.

RESUMO Objetivos: Verificar a ocorrência de fatores de risco e de proteção para a síndrome da morte súbita do lactente durante consulta de enfermagem. Métodos: Estudo de coorte retrospectivo conduzido a partir de registros em prontuário de saúde de serviço de atenção primária do município de São Paulo. Amostra foi composta por 63 lactentes atendidos no período de janeiro a dezembro de 2016. Resultados: A média de idade dos lactentes foi de 3,2 meses. Os principais fatores de risco identificados foram presença de objetos macios no berço (93,6%) e o compartilhamento de leito (58,7%). Fatores de proteção predominantes foram: aleitamento materno (95,2%) seguido de imunização atualizada (90,5%). Conclusões: Foram identificados fatores de risco e de proteção para a síndrome da morte súbita do lactente na amostra estudada, indicando a importância da abordagem da temática junto às famílias de crianças menores de 1 ano, para prevenção da ocorrência de tais eventos.

Risk and protective factors for sudden infant death syndrome / Factores de riesgo y de protección para la síndrome de la muerte súbita del lactante / Fatores de risco e de proteção para a síndrome da morte súbita do lactente

ABSTRACT Objectives: To verify the occurrence of the risk and protective factors for sudden infant death syndrome during nursing consultation. Methods: Retrospective cohort study conducted based on medical records from a primary care unit in the municipality of São Paulo. The sample consisted of 63 infants assisted from January to December 2016. Results: The average age of infants was 3.2 months. The main risk factors identified were the presence of soft objects in the crib (93.6%) and bed sharing (58.7%). Predominant protective factors were breastfeeding (95.2%) followed by updated immunization (90.5%). Conclusions: Risk and protective factors for sudden infant death syndrome were identified in the study sample, indicating the importance of addressing the issue with families of children under 1 year of age to prevent the occurrence of such events.

RESUMEN Objetivos: Verificar la ocurrencia de factores de riesgo y de protección para la síndrome de la muerte súbita del lactante durante consulta de enfermería. Métodos: Estudio de cohorte retrospectivo conducido a partir de registros en prontuario de salud de servicio de atención primaria del municipio de São Paulo. La muestra ha sido compuesta por 63 lactantes atendidos en el período de enero a diciembre de 2016. Resultados: La media de edad de los lactantes ha sido de 3,2 meses. Los principales factores de riesgo identificados han sido la presencia de objetos blandos/suaves en la cuna (93,6%) y el compartir de lecho (58,7%). Factores de protección predominantes han sido: amamantamiento materno (95,2%) seguido de inmunización actualizada (90,5%). Conclusiones: Han sido identificados factores de riesgo y de protección para la síndrome de la muerte súbita del lactante en la muestra estudiada, indicando la importancia del abordaje de la temática junto a las familias de niños menores de 1 año, para prevención de la ocurrencia de tales eventos.

RESUMO Objetivos: Verificar a ocorrência de fatores de risco e de proteção para a síndrome da morte súbita do lactente durante consulta de enfermagem. Métodos: Estudo de coorte retrospectivo conduzido a partir de registros em prontuário de saúde de serviço de atenção primária do município de São Paulo. Amostra foi composta por 63 lactentes atendidos no período de janeiro a dezembro de 2016. Resultados: A média de idade dos lactentes foi de 3,2 meses. Os principais fatores de risco identificados foram presença de objetos macios no berço (93,6%) e o compartilhamento de leito (58,7%). Fatores de proteção predominantes foram: aleitamento materno (95,2%) seguido de imunização atualizada (90,5%). Conclusões: Foram identificados fatores de risco e de proteção para a síndrome da morte súbita do lactente na amostra estudada, indicando a importância da abordagem da temática junto às famílias de crianças menores de 1 ano, para prevenção da ocorrência de tais eventos.

Atención de enfermería ante la muerte del niño en el P. M. C: Experiencias del cuidador primario / Nursing care before the death of the child in the P. M. C: Experiences of the primary caregiver

Introducción: El miembro de la familia que asumió la responsabilidad total del cuidado de las necesidades del niño dentro del Programa Madre Canguro como cuidador primario vivencia un duelo desautorizado cuando el niño muere. La expresión del duelo se ve limitada por el mismo, la familia y la sociedad, incluyendo al sector salud, pues la muerte del niño no es reconocida ni apoyada abiertamente a pesar de ser una situación triste e inesperada. En este sentido, el cuidado de enfermería durante la hospitalización del niño, su muerte, y el proceso de duelo en el hogar no siempre responde a las necesidades y expectativas del cuidador primario. Objetivo: Describir las experiencias del cuidador primario frente a la atención de enfermería ante la muerte del niño en el Programa Madre Canguro en la ciudad de Bogotá, 2019. Diseño: Investigación cualitativa de tipo fenomenológica descriptiva. Los datos se recolectaron mediante entrevistas a profundidad a seis cuidadores primarios. Las entrevistas fueron grabadas, transcritas textualmente, y posteriormente analizadas manualmente mediante el método de Colaizzi. Resultados: La experiencia del cuidador primario se describe en la categoría central Proteger y transformar el vínculo cuidador-niño: un reto para la atención de enfermería en duelo y en los temas desempeñar el rol de cuidador en la unidad fue complejo; enfrentar la muerte fue impactante; afrontar la ausencia fue doloroso; preservar la memoria fue necesario; y aprender del proceso de duelo fue avanzar. Conclusión: La experiencia del cuidador primario frente a la atención de enfermería ante la muerte del niño en el Programa Madre Canguro se describe como la necesidad de cuidado de enfermería al niño y el cuidador, y el deseo de la participación de enfermería desde el periodo de hospitalización, momento de la muerte y hasta proceso de duelo en el hogar. La atención de enfermería ante la muerte del niño en el P.M.C puede mejorar al centrarse en las expectativas y necesidades del cuidador primario. La experiencia de los cuidadores primarios comparte elementos comunes a pesar de ser una vivencia única y personal

Introduction: The family member who assumed full responsibility of the child's needs in the Mother Kangaroo Program as the primary caregiver experienced a disenfranchised grief when the child died. The expression of bereavement is limited by himself, the family and society, including the health sector; since the death of the infant is not openly recognized or supported despite being a sad and unexpected event. In this sense, nursing care during the child's hospitalization, death, and the bereavement process at home doesn't always respond to primary caregiver needs and expectations. Objective: To describe the primary caregiver's experiences regarding nursing care in the face of the child's death in the Kangaroo Mother Program in Bogotá (Colombia), 2019. Design: Qualitative research using a descriptive phenomenological approach. The data were collected through in-depth interviews with six primary caregivers. The interviews were recorded, transcribed verbatim, and later analyzed manually using Colaizzi's method. Outcomes: The primary caregiver's experience is described in the main category Protecting and Transforming the Caregiver-Child Bond: A Challenge for Bereavement Nursing Care. Five themes expressed this phenomenon: Playing the caregiver role in the unit was complex; facing death was shocking; coping with absence was painful; preserving memory was necessary; and learning from the bereavement process was moving forward. Conclusion: The primary caregiver's experience regarding nursing care in the face of the child's death in the Mother Kangaroo Program is described as the need for nursing care not only for the childbut also for the caregiver. In addition, caregivers express a need for nursing care participation from the hospitalization period to the moment of death, and even to the bereavement process at home. Nursing care when a child's death in the P.M.C. can be improved by focusing on the primary caregiver's expectations and needs. The primary caregiver's experience shares common elements despite being a unique and personal experience

Epidemiología de las muertes súbitas infantiles inesperadas en Argentina: tendencia secular y variación espacial / Epidemiology of sudden unexpected death in infancy in Argentina: secular trend and spatial variation

Introducción. La mortalidad infantil incluye defunciones de menores de un año. La proporción de muerte súbita inesperada infantil (MSII) varía entre países y según las causas de muerte consideradas. Objetivo. Describir la variación espacial y temporal de MSII en Argentina entre 1991 y 2014 utilizando la Clasificación Internacional de Enfermedades, décima revisión. Materiales y métodos. A partir de la información de defunciones infantiles (Dirección de Estadísticas e Información de Salud), se calculó el porcentaje de MSII sobre el total de muertes infantiles y la frecuencia de las causas que la componían a nivel nacional, regional y provincial. El riesgo de muerte y la tendencia secular se calcularon con regresión de Poisson. Para detectar agrupamientos departamentales con porcentajes de MSII significativamente diferentes a los nacionales, se utilizó el programa SaTScan v9.1.1. Resultados. En Argentina, entre 1991 y 2014, fallecieron 267 552 menores de un año; el 7 % fueron MSII; la tendencia secular de estas causas fue negativa y estadísticamente significativa; el riesgo de MSII fue de 0,86, y se observó una gran heterogeneidad espacial. A nivel nacional, la causa más frecuente fue síndrome de la muerte súbita del lactante, con diferencias interregionales. Nueve agrupamientos departamentales tuvieron riesgo de MSII entre 4,36 y 1,24, significativamente diferentes al resto del país. Conclusiones. La proporción de MSII y de las causas que la componen presenta heterogeneidad interregional con predominio de códigos relacionados con diagnósticos imprecisos en las regiones más desfavorecidas y de síndrome de muerte súbita del lactante en las más desarrolladas.

Introduction. Infant mortality comprises deaths among infants younger than one year old. The proportion of sudden unexpected death in infancy (SUDI) varies by country and based on the cause of death. Objective. To describe the spatial and temporal variation of SUDI in Argentina between 1991 and 2014 according to the International Classification of Diseases, tenth revision. Materials and methods. Based on infant death data (provided by the Health Statistics and Information Department), we estimated the percentage of SUDI over the total number of infant deaths and the frequency of causes of death at a provincial, regional, and national level. The risk for death and the secular trend were estimated using a Poisson regression. The SaTScan software, v9.1.1, was used to detect clusters of districts where the percentage of SUDI was significantly different from the national percentage. Results. In Argentina, between 1991 and 2014, 267 552 infants younger than 1 year died; 7 % corresponded to SUDI; the secular trend of causes was negative and statistically significant; the risk for SUDI was 0.86, and a great spatial heterogeneity was observed. At a national level, the most common cause was sudden infant death syndrome, with inter-regional differences. In nine district clusters, the risk for SUDI ranged between 4.36 and 1.24, which is significantly different from the rest of the country. Conclusions. The proportion of SUDI and its causes show inter-regional heterogeneity; codes related to inaccurate diagnoses predominated in more unfavorable regions, while sudden infant death syndrome was prevalent in the more developed regions.

Sudden death due to mitochondrial diseases / 中国实用儿科杂志

Sudden unexpected death means a "healthy" person died suddenly of unknown diseases,usually within 6 hours after onset. It is reported that sudden unexpected death occurred from neonates(sudden infant death syndrome)to adults(sudden adult death syndrome). The patients suddenly died during daily activities,sleep or exercise. Underlying genetic diseases are main cause of sudden death. The etiological studies are performed in the patients of sudden death. Heart attack and encephalopathy due to varied genetic disorders are the two major causes. Sudden cardiac death accounts for more than half. It is known that some inherited metabolic diseases associated with sudden death sometimes. Mitochondrial diseases are a group of inherited metabolic diseases. Some patients of mitochondrial diseases suddenly died of acute heart failure,malignant arrhythmia or encephalopathy. With the advancement of genetic technology,post-mortem genetic diagnosis became available in some cases. The definite genetic diagnosis is the key for the genetic counseling of the families and prenatal diagnosis of their fetuses.

Diagnostic Odyssey and Application of Targeted Exome Sequencing in the Investigation of Recurrent Infant Deaths in a Syrian Consanguineous Family: a Case of Spinal Muscular Atrophy with Respiratory Distress Type 1

Spinal muscular atrophy with respiratory distress type 1 (SMARD1) is a rare autosomal recessive disorder caused by a defect in the immunoglobulin mu binding protein 2 (IGHMBP2) gene, leading to motor neuron degeneration. We identified an infant with SMARD1 by targeted exome sequencing from a consanguineous Syrian family having a history of recurrent infant deaths. The patient initially presented intrauterine growth retardation, poor sucking, failure to thrive, and respiratory failure at the age of two months, and an inborn error of metabolism was suspected at first. Over a period of one month, the infant showed rapid progression of distal muscular weakness with hand and foot contractures, which were suggestive of neuromuscular disease. Using targeted exome sequencing, the mutation in IGHMBP2 was confirmed, although the first report was normal. Targeted exome sequencing enabled identification of the genetic cause of recurrent mysterious deaths in the consanguineous family. Additionally, it is suggested that a detailed phenotypic description and communication between bioinformaticians and clinicians is important to reduce false negative results in exome sequencing.

Síndrome de muerte súbita del lactante / Sudden Infant Death Syndrome (SIDS)

Resumen El síndrome de muerte súbita del lactante es la principal causa de muerte infantil post neonatal en los países desarrollados. El mismo se caracteriza por una muerte repentina e inexplicable de un infante menor a un año. La compleja interacción de múltiples factores en su patogénesis se ilustra con la teoría del triple riesgo, la cual involucra un infante vulnerable en un periodo crítico de su desarrollo ante un factor de riesgo externo. Por medio de educación a los cuidadores y padres se ha documentado una disminución importante en su incidencia, aunque la misma continúa siendo muy alta.

Abstract Sudden infant death syndrome is the leading cause of post neonatal infant death in the developed countries. It is characterized for the sudden and unexplained death of an infant younger than one year old. The interaction of multiple factors in its pathogenesis is illustrated by the triple risk theory, which involves a vulnerable infant at a critical moment of its development facing an external risk factor. Through education to caregivers and parents a drop in incidence has been documented, although it is still very high.

Intenção das mães em colocar o bebê para dormir em decúbito dorsal: um estudo de base populacional / Identifying mothers' intention to place infant in supine sleep position: a population-based study

Resumo Este estudo teve por objetivo conhecer a opinião das mães e identificar os fatores associados à intenção de colocar o bebê para dormir em decúbito dorsal em Rio Grande, RS. Foi aplicado questionário padronizado a todas as mães que tiveram filho nas duas únicas maternidades, entre 01/01 a 31/12/2010, e que residiam neste município. Utilizou-se teste do qui-quadrado para comparar proporções e regressão de Poisson, com ajuste robusto da variância na análise multivariável. A medida de efeito utilizada foi razão de prevalências (RP). Dentre as 2.395 (97,2% do total) mães entrevistadas, 20,5% (IC95%: 18,4%-21,6%) manifestaram intenção de colocar o bebê para dormir de barriga para cima. Esta intenção variou de 11% (IC95%: 8,1-13,7), entre mães com três ou mais filhos, a 35% (IC95% 31,1-40,2), entre aquelas com 12 anos ou mais de escolaridade. Após analise ajustada, mães de menor idade, de maior escolaridade e renda familiar, que realizaram pré-natal na rede privada, ou que tiveram três ou mais filhos, apresentaram RP significativamente maior para colocar o bebê para dormir de barriga para cima, em relação às demais. Campanhas de incentivo a esta prática devem priorizar mães de pior nível socioeconômico, de maior idade e que realizam pré-natal em unidades básicas de saúde.

Abstract This study aimed to identify mother's opinion on infant sleep position and the factors associated with the intention to place the infant in the supine position in the municipality of Rio Grande, Southern Brazil. A standardized questionnaire was applied to all mothers residing in this municipality who gave birth to a child in the only two local maternity wards from January 1 to December 31, 2010. Chi-square test was used to compare proportions, along with a Poisson regression with robust adjustment in the multivariate analysis. The effect measure used was prevalence ratio (PR). Of the 2,395 mothers interviewed (972% of the total), 20.5% (95%CI: 18.4%-21.6%) intended to place the newborn to sleep in the supine position. This prevalence varied from 11% (95%CI: 8.1-13.7) for mothers with three or more children to 35% (CI95%: 31.1-40.2) among those with 12 or more years of schooling. After adjusted analysis, younger mothers with higher education and household income who performed prenatal care in the private system or who have had three or more children had significantly higher PR to place the baby to sleep in the supine position compared to others. Campaigns encouraging this practice should focus primarily on older mothers of lower socioeconomic level and performing prenatal care in PHC facilities.